
Rhylie getting her IV started before getting her infusion

Rhylie visiting the horses at the horse show

Rhylie is getting a No No which is a soft cast to cover her IV site so that the IV won't move

Rhylie has a knot on her leg which is called Calcinosis

Calcinosis on Rhylie's Leg

Rhylie loves to play with play doh

Rhylie playing with her dad while getting her infusions

Rhylie is prepping for her sedated MRI

Rhylie got a chance to meet Mickey Mouse for her 5th birthday

Rhylie taking her medication before getting her infusion

Rhylie wearing braces to keep her from walking outwards

Rhylie playing with toys to keep her occupied while getting her infusions

Rhylie after getting her treatments

Rhylie when she was a baby in the NICU

Rhylie enjoys playing with toys while getting her treatment

Rhylie getting her infusions

Rhylie's left leg is bent which is called a Contracture due to imflammation of the muscle

Located on Rhylie's left arm is a long discolored streak due to her dermatomyositis

Rhylie is always smiling

Treatment Day

Rhylie is such a happy child even when she's getting her infusions

Rhylie takes gymnastics which is another form of physical therapy calcinosis is visble on both legs

Make a wish granted her a wish of seeing Mickey and Minnie Mouse

Rhylie and Make a Wish volunteers presenting her with gifts

Rhylie and daddy just before her sediated MRI

To show her appreciation Rhylie gave her nurse Courtney a thank you gift

Left leg constracture

Rhylie's left leg is slightly bent which is the cause of muscle damage

Rhylie had a left leg contracture which was a result of muscle damage that caused her left leg to be shorter
Now that you know what Dermatomyositis is let me show you what living with it looks like. I was diagnosed with Juvenile Dermatomyositis at the tender age of 2. My mother and father were shocked, scared, but ready for the challenge! this section will show you photographs of my many sessions of injections to treat juvenile dermatomyositis. I currently still undergo these injections and will have to do so for the rest of my life. Take a look at what my journey has been like!